Imagine if you had a disease that is so rare, only 20 other people in Australia have it.
Ben Oakley has Stiff Person Syndrome, which occurred suddenly when he was 17 years old. It took a year for Ben to be diagnosed with the disease, but even now, doctors don't really understand the disease.
Medicinal cannabis has drastically improved the quality of Ben's life, going from almost 600 body spasms in a three year period, to three in 2.5 years.
Broadcasting live from Earth Expo, Brian Carlton talks with Ben Oakley and his father Michael, about this disease and medicinal cannabis.